Lily had a rough patch last night. Her oxygen levels were dipping very low and were causing her to turn like Lee puts it "a blueberry". She is quite a wiggler and each time she dances around or kicks her little legs her oxygen levels decrease. Medications were initially helping correct this problem but they didn't seem to be doing the trick. Her team was right on top of everything and we had about 10 people discussing and making decisions with us last night. All babies are born with a small hole in their hearts called a patent ductus arteriosus (PDA) which closes itself shortly after birth. With TGA babies sometimes they need a procedure to keep this hole open to allow for adequate mixing of the red and blue (oxygenated/unoxygenated) blood. We were hopeful that Lily wouldn't need this initial surgery but things proved differently last night. Lily underwent a procedure this morning called a balloon atrial septostomy which keeps the PDA hole open to allow for sufficient mixing of the red and blue blood. Now that she had this procedure she should be stable and just fine for her big day on Monday. That is when she will undergo open heart surgery for her arterial switch (more on that later).
Lily did beautifully and her team is pleased with her oxygen levels. She looks great and check out her new hair bow!
Lily looks so beautiful!
ReplyDeleteI could tell when I met her last night that she was one tough lady and now with the procedure this morning, I am sure she will be just fine waiting for her big day on Monday. Laura and Lee congratulations!! You guys are so strong and doing a great job. Love you!! PS--Everyone is thinking about the three of you and you are in our prayers.
Lily is beautiful! They say those ICU babies are toughies!! Remember, one day at a time!!
ReplyDeletexoxo
Jaime
She's so beautiful Laura and Lee. That sweet gorgeous little face makes my heart swell. Do you just sit and stare at her? Hope you two are getting some naps in here and there when you aren't staring into that perfect little face. Prayers and prayers for you all. Love,
ReplyDeleteJane
Pretty in Pink!
ReplyDeleteWhat a strong and beautiful little girl! You guys are going to be such wonderful parents.
ReplyDeleteShe is so cute!! I love the bow!! She is one strong little pip squeek- a fighter like her mama!! xoxoxo Love to all!!
ReplyDelete-Meghann
so proud of you guys! what strength and courage you, lee, and little baby lily have!
ReplyDeleteLily is so lucky to have you for her mommy!!! And Lee as her daddy! My mom would be all over that pink bow haha - Lily looks like a little sweet pea with it on! She is one strong little baby girl :)
ReplyDelete-- Cousin Kelly D
We are so thrilled for all three of you and continue to keep everyone in our prayers. Lee, we'll have to get our daughters applications to work at the pools together and I'm willing to bet they'll be able to unleash their own reign of terror. We love you!
ReplyDeleteWhat a beautiful little girl with such amazing parents! Thinking of you guys in the coming days although she's already proved one tough (and cute) little cookie. Btw, I can tell she's going to be a Skee Ball and horseshoes champ (just like dad). Wishing all the McManus's lots of love and our prayers. Take care and can't wait to get her home to Croskey Street! Allison and Roy
ReplyDeleteLaura and Lee - You should be very proud of the strength that you both and Lily have shown. When all is done, you can always look back and know what you are made of, and that you can tackle all that comes your way. Chris, Ava, Morgan and I are thinking of you all the time. All will go well!
ReplyDeleteMuch love,
Andrea